Privacy refers to the agreements you make with questions about how to collect, store, analyze, use information about yourself and share it with you. On the other hand, data protection refers to the control of information that someone shares with others. Researchers who are invited to publish or fund their data have become a common practice in recent years. Please think carefully when drafting confidentiality procedures when writing your minutes. While the IRB campus does not require researchers to make their data public, we discourage researchers from ensuring that unidentified data will never be published unless they are absolutely certain that they are not invited to do so. They must also explain confidentiality procedures to their research subjects. This manual contains examples of texts describing confidentiality procedures for researchers. Use question 7 below to access the corresponding sample language. Do not use the samples in a non-critical manner as they may not be suitable for your study. The main risk for researchers in the social and behavioural sciences and the humanities is an involuntary disclosure of data if: the information you have collected is identifiable, but not sensitive or potentially harmful, and you do not plan to identify subjects in your results. Researchers should inform participants whether their data is published in an identified or unidentified form, shared with other researchers, or used for future research. You can apply for a privacy certificate so you don`t have to disclose your data. When a CoC is issued, the NIH requires that research participants, in the form of consent, disclose protection and exceptions to that protection.
Click here for more details. If your study individually collects identifiable information that could harm subjects when it is disclosed, you should develop a privacy plan and describe it in the protocol application.